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Transforming institutional governance and ethics for Indigenous control of Indigenous data

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Operationalizing the CARE and FAIR Principles for Indigenous data futures

As big data, open data, and open science advance to increase access to complex and large datasets for innovation, discovery, and decision-making, Indigenous Peoples’ rights to control and access their data within these data environments remain limited. Operationalizing the FAIR Principles for scientific data with the CARE Principles for Indigenous Data Governance enhances machine actionability and brings people and purpose to the fore to resolve Indigenous Peoples’ rights to and interests in their data across the data lifecycle. Read the full story

Featuring commentary from Collaboratory member Stephanie Russo Carroll

April 16, 2021

Indigenous Peoples’ Data During COVID-19: From External to Internal

Global disease trackers quantifying the size, spread, and distribution of COVID-19 illustrate the power of data during the pandemic. Data are required for decision-making, planning, mitigation, surveillance, and monitoring the equity of responses. There are dual concerns about the availability and suppression of COVID-19 data; due to historic and ongoing racism and exclusion, publicly available data can be both beneficial and harmful. Systemic policies related to genocide and racism, and historic and ongoing marginalization, have led to limitations in quality, quantity, access, and use of Indigenous Peoples’ COVID-19 data. Governments, non-profits, researchers, and other institutions must collaborate with Indigenous Peoples on their own terms to improve access to and use of data for effective public health responses to COVID-19. Read the full story

Featuring commentary from Collaboratory member Stephanie Russo Carroll

March 29, 2021

Case Report: Indigenous Sovereignty in a Pandemic: Tribal Codes in the United States as Preparedness

In this brief research report, we examine 41 publicly available tribal public health and emergency preparedness codes to gain a better understanding of the institutional public health capacity that exists during this time. Read the full story

Featuring commentary from Collaboratory members Danielle Hiraldo and Stephanie Russo Carroll

March 15, 2021

Network Connects Indigenous Knowledges in the Arctic and U.S. Southwest

Indigenous Peoples from the Arctic and the U.S. Southwest have joined together to tackle issues of food sovereignty in two environmental extremes. Their bond led to a swift response to COVID-19. Read the full story

Featuring commentary from Collaboratory members Mary Beth Jäger and Lydia Jennings

January 13, 2021

Policy Brief: Native Nation Rebuilding for Tribal Research and Data Governance

Indigenous Peoples conducted research long before their interactions with European settlers. Whether through observation or practice, research in a non-western context was woven into Indigenous ways of knowing and being. It continues to inform Indigenous Knowledges of landscapes and natural resources, governance systems, intra- and inter-governmental relationships, and behavior. The outcomes of this research are reflected in how Indigenous Peoples understand who they are today. Research in Indigenous communities has evolved—and not always in positive ways. For decades, noncommunity-member researchers, including non-Indigenous researchers, have studied Indigenous Peoples and communities. Download here

Freaturing Collaboratory members Danielle Hiraldo, Mary Beth Jäger, Dominique David-Chavez and Stepanie Russo Carroll

January 7, 2021